by Ruby Edwards | Jun 7, 2016 | Support
An invite from Great Ormond Street : Do you have a platelet function disorder? If you are aged 8-16 and have a platelet function disorder, join Kate Khair from Great Ormond Street Hospital and Haemnet at The Magic Circle on Wednesday 13...
by Ruby Edwards | Nov 4, 2015 | News
In 2011, Noah and his family were asked to join the Genotyping and Phenotyping of Platelets (GAPP) research programme based at the University of Birmingham. Since then, the project has had some significant results which have been published recently and detailed within...
by Ruby Edwards | May 18, 2015 | Support
What a lovely way to start the week with thanks from another Mum, living life with PFDs! “… this is the first page for PFD that I have come across. It’s just nice to have stumbled across some info, as our Haematologist is very honest and says that he...
by Ruby Edwards | Apr 9, 2015 | News
As a proud Ambassador for Contact a Family, Ruby was asked to write an article about her experience of living life with a rare condition. We hope you’ll enjoy reading it … on page 17!
by Ruby Edwards | Feb 28, 2015 | News
We’re passionate about supporting World Rare Disease Day, celebrating our uniqueness! Raise your hands to life with rare #bleedingdisorders …
