As
an Ambassador for Contact a Family – the UK’s largest Charity for families with disabled children – Ruby has been asked to speak at the launch of their new initiative at The University of Birmingham.
Contact a Family provide information, advice and support. They ring families together so they can support each other. They campaign to improve their circumstances, and for their right to be included and equal in society. And tonight, they will launch Help When They Need It Most to support families who live life in and out of hospital.

Hi my son just was diagnosed. He is 16 yearsold. We live in Waterbury Connecticut in their United States.
Thanks for your resources.
He also has Noonan Syndrome and Valve Pulmonary stenosis