Funny Blood raises awareness of rare blood conditions called Platelet Function Disorders

Funny Blood raises awareness of rare blood conditions called Platelet Function Disorders (PFDs), signposts information to support families living with the little-known condition and fundraises for the ongoing care of sufferers at the Haemophilia Unit in Birmingham Children’s Hospital.


Funny Blood was founded by Ruby Edwards in 2009 when her son was diagnosed with a number of complex Platelet Function Disorders and Thrombocytopenia. Ruby’s motivation was to help her son, and those like him, by doing something positive. The name – Funny Blood – originated from the way she described her son’s blood to him and his sister.

We’re bringing Funny Blood to the public eye with events and more

Find out what we do to raise awareness, support families and fundraise via campaigns, projects and events.

Funny Blood events

Great local coverage for Funny Blood's latest campaign ... good luck David Finn! ... See MoreSee Less

A first look at Friday's front page of the Evesham Observer #tomorrowspaperstoday #regionalfronts

4 days ago  ·  

Not long to go until Dave starts his #BredonHillChallenge for Funny Blood ... take a look at links for more details. Maybe you can join him on the Hill or help spur him on? Your support would be appreciated x

www.sworcs.ac.uk/news/dave-finn-bredon-hill-challenge/
www.facebook.com/FunnyBloodPage/
www.funnyblood.co.uk/bredon-hill-challenge/
... See MoreSee Less

Bredon Hill Challenge

July 1, 2016, 6:00pm

Bredon Hill

Funny Blood supporter - Dave Finn - is planning to run up Bredon Hill every day for the whole month of July. He will run from various start points to the summit tower and back. Most routes are between...

6 days ago  ·  

Do you have a platelet function disorder? If so, you might be interested in this invite from Great Ormond Street ...

"If you are aged 8-16 and have a platelet function disorder, join Kate Khair from Great Ormond Street Hospital and Haemnet at The Magic Circle on Wednesday 13 July for a day of food, fun and fantastic magic. We know it’s tough living with a platelet function disorder. Sadly we can’t just magic it away for you. But we hope you’ll come along to The Magic Circle and help us understand more about what it’s like for you. In return, we’ll keep you well fed, and you can pick up a few magic tricks. You can bring your parents, brothers/sisters too! And we can help with your travel costs, simply bring your train/bus receipt along and we’ll refund your fare.

All you need to do is send an email to info@haemnet.com and let us know who is coming or to find out more.

Wednesday 13 July
10.30 – 14.00
The Magic Circle
12 Stephenson Way
London
NW1 2HD"
... See MoreSee Less

3 weeks ago  ·  

Some great support from the students at South Worcetershire College today, gaining sponsorship for Dave's #BredonHillChallenge : www.funnyblood.co.uk/bredon-hill-challenge/. Thanks a million! ... See MoreSee Less

1 month ago  ·  

Funny Blood added an event. ... See MoreSee Less

Bredon Hill Challenge

July 1, 2016, 6:00pm

Bredon Hill

Funny Blood supporter - Dave Finn - is planning to run up Bredon Hill every day for the whole month of July. He will run from various start points to the summit tower and back. Most routes are between...

2 months ago  ·  

Giving Blood

Ruby’s family continue their support for NHS Blood and Transplant and recently met an amazing man who was making his 65th donation on his 65th birthday!        ... read more