What is Funny Blood?
Funny Blood is a Charitable Trust founded to raise awareness of rare blood conditions called Platelet Function Disorders. Funny Blood raises funds for research and awareness of the condition. We do – because nobody else does.
Funny Blood was founded by Ruby Edwards, as her son – Noah – was only one when he was diagnosed with Platelet Function Disorder with Thrombocytopenia. This means that the number of platelets in his blood are very low and do not work correctly, so even a minor bump may lead to excessive bruising. If Noah is unlucky enough to cut himself he can bleed for a very long time and he often requires urgent attention and treatment. The name – Funny Blood – is derived from the way Ruby described Noah’s blood to him and his sister …
How can Funny Blood help?
As with many families living with blood disorders, Ruby has been accused of physically abusing her son and often endures the looks that indicate people believe Noah is not being well looked after. Ruby founded Funny Blood in 2009 to turn her experience into something positive – to share information with other parents and children with similar disorders so they would not have to go through the same experience alone.
We’ve already funded a medical student for summer 2012 to work alongside The Platelet Group (GAPP), based at The University of Birmingham. The Platelet Group are researching Platelet Function Disorders and work directly on Noah’s – and his family’s – DNA and Bloods to help research the little-known condition. Please go to our Where your money goes page for more details on what we’ve done to aid research so far.
What is Funny Blood’s aim?
The Funny Blood team has pledged to raise significant funds to provide equipment and grants for research and awareness of Platelet Function Disorders.
I saw your interview on BBC Breakfast 27/04/12 and looked at your website - keep up the good work!– Christina Davies
Well done for raising awareness of this disorder ...– Wilna Comb
I was relieved when I saw you on the Breakfast News, nobody I speak to has heard of it. It does need more awareness, they do need to understand the long term affects as it isn't just about bruising - they are only just discovering other affects it has on the body ...– Kathryn Shipp
Thanks so much for this website, keep up the good work!– Emma and Freddy
Good luck with your son and when things get bleak remember there is light at the end of the tunnel ...– Kevin Hoyes
You are a great example of the things you do for your kids – far above and beyond the call of duty ...– Gill Lowe
Funny Blood is excellent and communicating this type of complex problem is often tricky ...– Jon Gibbins
Your work will be giving a lot of benefits to many people who suffer blood dyscrasias ...– Anthony Charles
Well done for bringing the platelet disorder to the for front. I love the name ... love what you are doing Ruby to highlight Funny Blood. I have ITP (in remission) so I appreciate all that you do. God bless– Sherry Gorman-Rickard
Funny Blood - Awesome Attitude!– Awesome Out Loud
Loved the Mum on BBC Breakfast talking about funny blood. Inspiring others ... – Alison Smith
Thanks for bringing awareness to the silent illnesses ...– Jackie Fiamengo-Sunara
You are doing a fab job raising awareness ...– Tanya and Nieve