What is Funny Blood?
Funny Blood is a Constituted Unincorporated Association with Charitable Objects i.e. raising awareness of Platelet Function Disorder and was founded by Ruby Edwards to raise awareness of her son’s blood condition. Ruby’s son – Noah – was only one when he was diagnosed with the rare condition called Platelet Function Disorder with Thrombocytopenia. This means that the number of platelets in his blood are very low and do not work correctly, so even a minor bump may lead to excessive bruising. If Noah is unlucky enough to cut himself he can bleed for a very long time and he often requires urgent attention and treatment. The name – Funny Blood – is derived from the way Ruby described Noah’s blood to him and his sister …
How can Funny Blood help?
As with many families living with blood disorders, Ruby has been accused of physically abusing her son and often endures the looks that indicate people believe Noah is not being well looked after. Ruby founded Funny Blood in 2009 to turn her experience into something positive – to share information with other parents and children with similar disorders so they would not have to go through the same experience alone. Please contact Funny Blood if you think we can provide further information to support you and your family.
What is Funny Blood’s aim?
Education of the facts about Noah’s disorder is very important to keep him safe – and raising awareness of this is our main aim. Funny Blood also hopes to raise significant funds for research into Platelet Disorders and aims to become a Charitable Trust later in the year. Currently, Funny Blood is a Constituted Unincorporated Association with Charitable Objects i.e. raising awareness of Platelet Function Disorder. Please show your support – follow us on Facebook and Twitter – and let us know if you want to join in with future awareness-raising and fundraising events …
I saw your interview on BBC Breakfast 27/04/12 and looked at your website - keep up the good work!– Christina Davies
Well done for raising awareness of this disorder ...– Wilna Comb
I was relieved when I saw you on the Breakfast News, nobody I speak to has heard of it. It does need more awareness, they do need to understand the long term affects as it isn't just about bruising - they are only just discovering other affects it has on the body ...– Kathryn Shipp
Thanks so much for this website, keep up the good work!– Emma and Freddy
Good luck with your son and when things get bleak remember there is light at the end of the tunnel ...– Kevin Hoyes
You are a great example of the things you do for your kids – far above and beyond the call of duty ...– Gill Lowe
Funny Blood is excellent and communicating this type of complex problem is often tricky ...– Jon Gibbins
Your work will be giving a lot of benefits to many people who suffer blood dyscrasias ...– Anthony Charles
You are doing a fab job raising awareness ...– Tanya and Nieve